Marfan Syndrome (Subscribe)
Links
Canadian Marfan Association
Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.
Living With Marfans
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
Marfan Syndrome: Does Diet Play a Role
http://www.ctds.info/marfan.html
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.